Miracles R Happening

Petey

Petey

I need a Miracle...

I'm writing this prayer request for my older brother Petey.  He was recently diagnosed August, 2009 with Late Stage Multiple Sclerosis.  In a matter of 3 short weeks prior to finally getting the medical attention needed to diagnose him, his condition had deteriorated rapidly; he lost most of his mobility now and cant walk without help; his speech is slow and often slurred and cannot perform the daily functions that most take for granted. Doctors told us his brain had shrunk and the MRI shown scattered lesions on his brain and now fear he will fall into dementia due to the rapid progession in such a short time. He is only 41 years young and has always been very vibrant soul...  he loves to sing and still hopes to "make it big" one day...   

After spending a week in the hospital my brother and his girlfriend has since come to live with my parents to make sure he has all the help he needs.  The family has come together it seems to "fight this evil battle", like two are stronger then one... Pete seems to be in good spirits most the time... but it just dont seem real, like a nightmare we are all in just waiting to wake up...  While I was in his room, Pete said to me, "the doctors said I have holes in my brain"  I told him I knew what they said... he then said to me, "Lisa, I need a miracle"  I looked back at him, smiled and told him "we are gonna get one Pete". 

So here I am, praying for a miracle... The very next day after the conversation we had, I found this site.. I beleive in the power of prayer... please say a short prayer for Pete and my family in hopes of the best!  :)  Thank you Dear Lord, here we are... Please ... Hear Our Prayers!  Amen

GOD BLESS & THANK YOU

XO

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Jen
Jen

I am praying for your family and for Pete. The Lord is close the the broken hearted, and those who are crushed in spirit, He Saves!! Hang in there, pray and BELIEVE!!!

BB4JC

Pete,

Lord, I ask you to come into the life and body of pete Jesus restore his body to the way you created him to be, fully functioning and vibrant.  Lord may this be only a testimony of your greatness in pete's life.  Send your angels to minister to him and those around him.  send your peace and passeth all understanding.  Lord you are the God that healeth Pete!  In Jesus Name we thank you in advance for the miracle!

Belynda

First and foremost whatever you do, do NOT allow yourselves or Petey to believe he is going to get worse or deteriorate. I can say this first hand from personal experience, because I am 33 years old and a little over a year ago was diagnosed, along with my twin sister with MS as well. For years we fought with doctors, we knew something was wrong, although we had completely different symptoms we knew it had to be something we were born with, because we were too young to be as sick as we were. No one believe us, we even dismissed eachother's complaints thinking it was just our imagination. We were even told several times it was psychological, to see a psychiatrist. So we gave up, and got much worse. My sister had to have neck surgery, and though it was a risky procedure, it was truly our saving grace. That was December 2007.

She woke up from surgery with double vision, and kept staggering when she walked, and fell quite a few times. I was convinced the doctors had her on way too much medicine for the pain, because this wasn't a normal symptom of her surgery. It continued for a week until she final went to the ER, despite me even pleading with her, she went christmas eve. The moment they doctors looked in her eyes she was admitted, they did CatScans, MRI's, you name it and were convinced she had a stroke during her surgery which went unnoticed. Not even 24hrs after being admitted she was told it was "more-then likely" MS, that she had lesions scattered throughout her brain (it slips my mind which area the gray or white matter, one of those is primarily where the lesions from MS target-memory loss is a great symptom of mine :)  Needless to say during her follow up visits her doctors, which were mine also, all told me I needed to go get an MRI of my brain and a lumbar puncture-well of course I was in denial, and even thought they were wrong about my sister, and must have thrown away 10 slips from our doctors to get the tests. Fast Forward to April, 2008-It was late one night, I had a horrible week with the kids taking turns with the stomach flu and had barely slept, but kept trying to be supermom and get everything done. I came walking out of my den, and barely made it to my kitchen island (about 20 steps) and fell onto it-I couldn't walk and was literally hanging on. I grabbed my cell phone and called my husband who was upstairs in bed to tell him to come help me, except when he answered I couldn't speak-I was stuttering, one word here and there would come out but I just could not get my mouth to say what my brain was telling it to, and I just started crying. I guess in the back of my head I knew, but I stayed in denial, and went to the doctors the next day (yep-i waited a whole day!) The results seemed like they took forever, though it was only 24 hours. It was MS. I had lesions thoughout, and did have one (or cluster?) located on the left side, in the periventricular area-my speech part. My sister never had a prior MRI of her brain for comparison, but I did, exactly 6 years prior in April 2002, and the only thing noted was chronic sinusitis. Not one lesion. In 6 years I went from none, to scattered thoughout my brain.

At first I let it get to me, and this is why I started this comment with what I did, I felt sorry for myself, babied myself, and slept 8months of my life away, not because I wanted to at times but because the fatigue from the MS has to be the most debilitating, because I can adapt to not speaking (texting-typing-writing) I can use a wheelchair if im having problems walking, I write everything down because my memory is horrible, but how do you adapt to being so exhausted? Even getting up to use the bathroom took everything I had. I went from 135lbs to 107 in literally a month. If something didnt change, I was going to die. That's when I decided I wasn't going to let MS take my life. Sure it sucks, but if I don't get up and walk everyday then my muscles will only be weaker then they already are with MS. I made sure everyone in my family knew I didn't want to be babied, I needed to be pushed sometimes forced to do things, regardless of how much I screamed and cried, or pulled the poor me-you have no idea crap. I've noticed that my mentality really has alot to do with how i feel any given day. If I do get depressed and think of the MS, what its caused and my symptoms, it does aggrivate it. Stress is the number one cause of exacerbations-well with 4 kids, all boys, 14, 10 and TWINS that are 4-how do i avoid stress? I can't! But I can react to it differently. Trust me, if you knew me at all, i'd be the last person you'd expect to give the "if you think you feel good you do speech", because at times I really don't know how I do it. But the biggest support I have is my family, and them treating me normal. Because when they were treating me like I was sick, I was sick.

I don't know what form your brother has, if it's relapsing remitting, or progressive, or a few others, don't let him give up. If you don't like what one doctor says, get another opinion. Sinia Hospital in Baltimore (I just happened to go there cuz my husband works there) is the best hospital on the east coast for brain and spine diseases and injuries. Dr. P J Foreman is the doctor who specializes in MS, he is great, and he will be agressive with treatment to get him better. He is also a professor at John's Hopkins, so he really knows everything and anything about the brain, and the newest treatments for MS. He also needs to listen to his body. Heat aggrivates MS, so if he takes too long of a hot shower-guess what? His symptoms will act up (these are only mini flare ups also known as pseudo-exacerbations), as soon as he cools down, the symptoms will stop. If he gets over-tired, he will have a flare up. He has to get regular sleep, and mini naps throughout the day, if he feels wiped out, tell him to lay down for a few. Educate yourselves, your family and Petey on as much as you can about MS. Maryland has a MS chapter here that can provide grants, an in home aide, it's incredible what they can help with. Trust me if you think you know all there is to know about MS-you don't. I am a compulsive researcher-I have to research everything, google it, buy books, find people and I still find out something new everyday.

Last but not least-this is his battle. He will be the one who ultimately will decide how he wants to deal with it, and with MS affecting each person differently, every day will be unpredictable. That's the hardest part, not knowing if I will walk, talk or remember anything tomorrow. Every day is just that, one day. But it is one day we overcame this disease and it didn't overcome us. Tell him to keep a notebook, take notes on everyday things, because if I didn't I wouldn't remember the idea I had yesterday on how to cope today. He will slowly accept it, and know, regardless of your religion, this is gods plan. We all have to fight something in life, maybe this is his fight. There is a lesson in it somewhere, we just have to figure it out. Good luck to you and your family, and be positive. He needs it.

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